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Reply to "Functional pouch obstruction/catheter emptying"

Hi all. I had the discharge meeting today with my surgeon. They think the pouch needs to come out. There is no information from any scans that suggest why this is happening. The malpositioned pouch on defocography wasn’t  much of anything apparently, all the CT scans have never shown any narrowing/strictures/wall thickening and the motility and pathology tests are clear. They’ve been about as thorough as they can be I think.  They said sometimes pouches do this? They suggested we try a temporary ileostomy to see if it makes a big difference, that way I don’t lose it for nothing if it ends up not helping. They can also check for rogue adhesions etc. that may secretly be causing problems. I still wonder about that given I have endometriosis and all the scarring that comes with that. I feel Ok with this plan, it will be a long road, but with a light at the end of the tunnel. Thanks all for your support through this!

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