Skip to main content

Reply to "Frustrated and scared to have total proctocoletomy"

Thank you Sharon and Erica�� My kids named my stoma Davey Jones after the Pirates of the Caribbean character because they think it makes noises like his face tentacle things. Thanks for the suggestion of having my little ones draw  pictures of what they think of  my baby pouch. And yes it does act just like a baby very unpredictable but I can finally laugh at my self now when Davey decides to be noisy. I was fearing the change and still am a little but then I remember that it will just be a new life style change and I was giving a second life to allow me to be here and watch my babies grow and meet new friends who are very supportive through these forums. Erica you are correct God does give his strongest soldiers the hardest battles and I'm sure his intentions are for us to be helpful to others that face the same battles so we don't feel alone. 24 is a young age to have your colon removed but I totally get you I'm 37 and being told I had colon cancer felt like the floor was pulled beneath me and world got turned upside down. I have a very supportive husband, family and friends yet no one to relate to and understand what I was going through until I found you guys in this forum which has been a blessing on its own. Thank you for the encouraging words and I will continue looking forward to life get and get healthier so I can have my second surgery and continue my journey! 

Copyright © 2019 The J-Pouch Group. All rights reserved.
×
×
×
×