Reply to "Frustrated and scared to have total proctocoletomy"

Finding you guys has been awesome. I felt extremely alone until I came across this site. It's hard to talk to people who haven't gone threw or know anyone with this hidden disease. The people around me think I'm over reacting because hey people have surgeries all the time. All I am hoping for is for it to not be cancer because that would mean more time away from my babies I have only been away from them for 2 days in their lives my youngest is 1 and I'm still breastfeeding him in the evenings when I get home from work so he will be forced to be cut off cold turkey and the other ranging from 3-13 keep asking me why everything needs to be done if I look fine. I guess I wish I would of had more time to prepare my children for this I've been in remission for so long that the oldest don't remember me having to be in the hospital getting iron infusions and blood transfusion when my UC was really out of control. I'm seeing the surgeon again this Friday to get fitted for my bag go over everything with my husband and getting a date for my first surgery. I feel blessed I found you guys because I'm sure I will need this support group even more after the surgeries. Thanks for being here :0)

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