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Reply to "Frustrated and scared to have total proctocoletomy"

BBE

I only know a little about FAP that I have learned from a friend who has it in her family, so I certainly won't pretend to be an expert. I hope you get more info moving forward so you know better if you are dealing with both diseases or what -- understandable that you are so concerned! But good to hear it looks like your doctors caught it early and are moving swiftly before it becomes an emergency.

I know it seems like this is all happening too quickly, but you are still healthy and  you do have some time to prepare. Cry a little, plan a little, pray a little (or whatever) -- just keep moving forward! If there is anything really big you've been meaning to get done, by all means prioritize what really NEEDS to be done (go easy on yourself) and just get that done. Anything that can be done by someone else should be and everything else can wait. You can DO THIS and your family can be stronger for it! 

Jennifer

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