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Reply to "From J-Pouch to K-Pouch"

Hi Kristen,

Jennifer have you a really good idea of what life can be with a Kpouch! Of course all are different. I got my K after 2 Jpouchs.I was left with a severe motility issue and went from an altered diet to just a handful of items I can digest and/or pass through that 30 Fr tube. Jen is so correct about telling you that is the only way to pass gas also. All of a sudden your belly is huge and you are frantically looking for the John.It has now become problematic to get supplies in a reasonable fashion also.

I have to intubate 10 to 12 times a day. NO sleep,Can truly limit your life. It becomes quite hard to find restrooms to empty in and then clean up yourself and the equipment discreetly.I am now carrying a backpack with a medical tag so I can show that I need the handicap or family facilities. Not wanting to pile on the bad things, I will say, I push myself to enjoy all of life I can , the next step is probably not an option as the last time I had an ostomy things went quite poorly.

It really takes one to two years to be fully recovered from these huge surgeries, so give yourself lots of time, don’t make decisions without thinking a very long time. Jen said it correct, the medical pros treat you like you should have known what to expect.

When truly, they don’t know themselves how we will turn out, if their honest. I’ve been told so many times that they are learning from me 🤦‍♀️, just what you need to hear, haha.

Well, chin up , ( to us all) you have time to improve and the numbers are on your side.

Enjoy life best you can🤗 and I really wish we had some support groups around 

Thanks for everyone’s info 

Jan

 

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