Reply to "Friend went from BCIR to Kpouch"

Vanessa,
I do not know if Dr C developed that technique but he did use it on me at least once when I had complete valve breakdown in 2007...they cut up about 30cms from the afferent limb (the incoming part of the small intestin into the pouch) and unhook the pouch/valve from the wall...then they remove the old valve(essentially liberating the pouch from the abdoment altogether) and flip the pouch over, reattach the old stoma end to the afferent limb and use the dangling 30cms of small bowel to create the new valve...really is cool...when I asked Dr C if it was a 1 time fix in case of valve failure he told me that once the pouch is vascularised when reattached he can do it as often as needed (hopefully not needed!)...meaning that you have a seemingly endless supply of material to create a new, vascularised valve (short gut syndrom not withstanding)....
So, yes there are solutions to slipped valves that do not involve losing the pouch altogether...you just need to find someone who knows how to do it and is willing to try...
I believe that he did the same thing to another k pouch member here who had repeat valve failure.
sharon
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