Finally! So glad that there is finally somewhere to go for help and info on FAP! When I had my surgery, it was known as a Park's pouch, later called an S-pouch. When I started seeing my GE doc over 15 years ago, he had no idea what a Park's pouch was! I don't think he had much experience with patients with any type of pouch, as he asked me to give him a copy of my surgery report so he would know what I had had done.
Diagnosed May 1981, first surgery for Park's Pouch August 1981, take down Nov. 1981.