Just a note for anyone with FAP that would like help or further information.
We are rare and a small group, but, all willing to help each other. There are many forms of incorrect information out there regarding FAP/GS and it is VERY important that you get up to date, accurate information. Please do utilize the website as a tool and please also contact me about joining our "secret" groups on Facebook as we talk about everything and anything FAP related. We are all here to help one another with this genetic condition.