Hey guys
New to the platform. Hope you’re all doing well. I had a j pouch put in about 15 years ago. Over the last 3-5 years I have been experiencing cramping, diahorea and the feeling of incomplete motions. Every 4 months or so I get a big flare up which is very uncomfortable. It gets to the point where I feel totally bloated, like I have a full stomach that needs to be emptied but only about a coins worth will come out leaving me drained and fatigued. The best way to describe how I feel is like there is a blockage and the stool cannot be released properly. As the days go I get more actuate acidic/burning /spasms and cramping in my stomach.
I have had several specialist do colonoscopies. One of them thought it was pouchitis due to some reasonable ulcers/scaring in the pouch but then my most recent guy though that it wasn’t pouchitis. After all these years I’m getting super fatigued and feeling at a loss as to what to do to combat this condition that is really effecting my quality of life.
I have tried different courses of antibiotics including flagyl and ciro. They seem to have medium term results but then the syptoms Return in a matter of months.
My new specialist has provided another scenario which I want to Investigate which is FLOPPY POUCH SYNDROME. From what I can find the symptoms seem very similar to what I experience.
Has anyone one had similar symptoms and figured out what it was or in fact been diagnosed with Floppy pouch syndrome ?
Many thanks in advance as I’m aware it’s not a simple case, but I am determined (and a little desperate) to find a remedy. I guess its always going to be hard with these things.
cheers
chris