Oh thanks mine is causing the intestines to pull down and move and twist. The pouch is actually fine. The mensmenery not sure if I’m spelling it right is very loose and floppy from what my surgeon keeps saying is happening. That keeps the intestines together.
My surgeon told me to gain weight, I’m too skinny, lol
my pouch is 23 years young
he has sewn my intestines to the wall twice already. I also had a procedure thru the anus to untwist it, he’s trying to find the spot radiography before he has to go back in. Nothing showed on my last mri or scope
he thinks I have a long piece of intestine twisting on and off itself as this comes and goes.
I’m glad what ever your surgeon is doing for you is working. I can be fine one minute and miserable and in pain the next and no matter what I eat does not stop it. Hello I had a cup of tea and then bent over in pain! Ugg
I’m in NYC teaching hospital and he’s seen this a lot. At least he believes me. Said worse case I’d have to have a temp ostomy as that seems to reset things I guess similar like your procedure but I’m not for this. I had something similar happen 7 years ago. No one could find the cause and they thought it was the pouch even though it looked good. I had the ostomy for 6 months and have been fine since so who knows if this has been a long term issue. I wonder too if this has been the case of my pouchitis issues.
still feeling like a Cornel experiment but I’m not loosing this pouch. I’ve fought too hard to keep it.
thanks for replying I feel alone in this issue even though I was told it’s common now.