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Fistula

OMG they finally found my fistula after CT scan with contrast, sonogram trans vaginal and outside, scope and than MRI with contrast they found it!!! Saw world renowned surgeon in Manhattan Dr Adrian Greenstein and his son Alexander at Mount Sinai. Starting tincture of opium. They are going to try and slow down flow to see if it will heal on its own. They both feel that they could possibly pull my pouch down and suture it to bypass the hole, but my chances of ending up with a permanent ileostomy are very high. They said they do not repair fistulas because they just come back and they will not put their patients through that. Based on what I read here that is true, because none of the treatments people have written about seemed to have a positive outcome. I'm happy they found this finally, because I was beginning to think I was crazy. Me and my GI knew it was there!! 

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