I am so sorry - I don't have any answers for how to fix any of this - it is awful and the "system" is a mess. I can't remember if you ever found a social worker? or some kind of advocate? Forgive me if you already tried this. This is why people are so angry in America - one of the reasons - we pay into a system that does not work. We hear stories (just saw this yesterday) about the hospital charging 645.00 for "the band aid" - etc. - so much fraud, deception, etc. going on it is insane. This is going way out on a limb here - one time - about 3 years ago - my grandmother was in a nursing home. Her roommate had some type of cancer - this was in the state of Indiana - somehow - that was where this very sick woman could get care as she had no money. Not saying you want to do that - but nursing homes often know how to bill - I have zero idea how this woman, who was only in her 40s, got into that place. I am throwing anything out there as you need help. I am truly so sorry.