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Reply to "Finding it hard to stay optimistic"

Angie, 

Yes, it was Judith Vorst and Wow! I loved all of her books, I was an addict!

She speaks clearly and with a lot of common sense about a lot of emotional subjects...She helped me a lot at a time when I was dealing with some very complex issues all surrounding my pouch and life with one in a world that doesn't understand.

I think that I would have given my left arm (need my right one for intubation purposes) to have someone, anyone to speak to about my pouch 20, 30 or more years ago. It was so awfully lonely here. With everything that we have learned in the interveening years (pouchitis, cipro and its side effects, PTSD..) my life could have been lived with so much less pain and stress...But you cannot live backwards....only forwards.

I did my best with what I was given and probably more than most people who are healthy...that is all anyone can do...their best. Beyond that you need to build fences...protect yourself from the world that cannot or does not wish to understand.

We have a very long road to travel with our pouches so we need to put ourselves and our health first if we wish to make it to our destination.

Sharon

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