Hugs, Frances. It is a shame that so many of us suffer (and others out there who suffer in silence because they are isolated by their various diseases).
Even if others try to understand and help, it is usually rather useless. I now understand why disabled folks would rather try to do as much on their own, than have people fuss over them and draw attention to them. I feel much better when I am accepted "as-is." My husband still tries to offer a helping hand when he sees me struggle a bit getting out of a chair. He still does not get it that it hurts me more when he pulls on my arm, helping me get up. He's just trying to be a gentleman, but it feels like I am slowing everyone down and refusing help, to boot!
Now I am whining, and didn't mean to hijack the thread. Been off my Cimzia for 2 months now and the arthritis symptoms are getting worse. I really want to get going on the Remicade, but need to be patient (practice what I preach!).
Jan 