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Reply to "Finding it hard to stay optimistic"

Hi Guys,

Jan, Wow! The picture looks fantanstic! Yes, I agree that we cannot stop living just because we are sick and that we have to push forward (I will not say push through the pain or there wil be a collective 'arghhh' from many on this forum). It looks fantastic and that is one of the places that hubby and I would love to visit if he could just stop breaking legs

Jenjen,

So sorry about your Easter weekend...it sucks to be down and out on the Holidays...Yes, the ladies troubles seem to double what we have to deal with and the guys just don't get it...even the male doctors...they do not understand that it changes everything in our bodies including how they react of exercise, food and how we sleep...ditto on the commercials...a big arghhh on those...We get the same ones here but our include 35yr old fashion models with fake grey hair...So that we can feel even worse about ourselves when they tell us how they are making the most of their old age! I am thrilled that I can still work no matter how hard it is...I need the work to keep my brain functionning...

My G-daughter is asleep on the sofa...teacher's strike today...I love having her... I taught her basic biology and the body's systems yesterday (she will be a doctor...!) I made pancakes at midnight for them for this morning...cannot be tired when she is here!

CT...yup! 100%

So....the rare diseases Doc...

My left iliac artery is dialated dangerously. From the CT scan we can see a narrowing then widening then narrow again...(slices are like bread slices across the body)...not sure if it is from birth, recent, due to inflamation or all of the surgeries...will have a arteriogram done very soon....he says that it requires either vigilance, meds or immediate attention...to avoid arterial disection...never a dull moment.

He did my full medical and family history....2hrs. Nearly fell off of his chair...am being reffered to yet another specialist for the Ehler's-Danlos, wants genetic testing done again too...he only does arteries...says that I do not have the arterial type of ED but that the arteries are very fragile and need constant surveilance...and the beat goes on....

...As for the pain, the flare is better. I walked a lot yesterday, the heels (2.5inches) help the Achilles tendonitis and hip but not the knees...can win for losing  

In spite of it all I am planning a family vacation and my trip home...not looking forward to the plane trip (8+hrs) but that is the price that you pay for fun.

Sharon

 

 

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