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Reply to "Finding it hard to stay optimistic"

Thanks Angie

I am feeling so helpless. Not my favorite feeling.

It used to be 'just' the hip, knee ankle etc but now my neck and shoulder are involved too...the whole right side. Turning over in bed is torture.

No relief. Last year refused pain meds (was still on high dose NSAIDs) now I can't survive without them.

I do non narcotic...keeps me head clear but they don't really touch the pain, just dull it slightly.

Yesterday I made hubby drag me to Ikea, short-cut it through the whole place and went strait to what I needed. Then the long line at the cash...I cut the line with my handicapped i.d. 

Some young idiot made a nasty comment...it broke me (something about 'handicapped people' and staying at home, being a pain...) Hubby got pissed and yelled back and I wanted to crawl into a hole.

It was my 2nd outing in 4 weeks other than work. I regretted it...wanted to die from humiliation.

Its bad enough to watch my body fall apart this quickly. But to be humiliated on top of it whenever I try to do something...demoralizing.

I see the specialist in 10 days..terrified that they will say nothing doing, can't help. 

Hubby does everything for me now. Laundry, fills & empties the dish washer, shopping, changes the bed...he is 14yrs older than me. Demoralizing.

Sharon

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