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Reply to "fed up with j-pouch"

Although I agree with Bill V.

I personally couldn't keep searching for a fix.

I was slowly dying. I see that now looking back when I had my pouch.  Nobody wants an ileo. Nobody. As as I have read in here the suffering some go through and that there is relief as I have had with an ileo. But we avoided it no matter what. It after time just becomes a part of you. In my experience.  (an ileo).

I compare it to when I quit smoking 20 years ago.

I was just tired of it and I quit after more than 30 years of smoking.  And I haven't smoked since.

Now. I kept my pouch for a little over two years and tried everything. I do mean everything. Diet to meds. Whatever. Nothing worked as I deteriorated.  Nothing was wrong with my pouch. It was healthy. I guess I fell into that small percentage of people that it just didn't work for them.

It was actually more miserable than the initial UC I had.

So. I decided for the sake of my wife. Who had watched me suffer and decline over the years and went into surgery to have it removed.  I considered a bcir but what if that didn't work. Like the pouch didn't. Well. I wouldn't be writing this.

In my own personal experience it was the right decision.

Now. Everyone has to make their own decisions. Everyone is different. 

So in saying that I will leave it at that.  I don't want to talk anyone to into getting an ileo and regretting it.

But in my case after over six years with it I have had zero problems. It has been my cure.

I never in my wildest dreams thought I be okay with it. But I am perfectly comfortable with it. I'm fortunate to be where I am and I live my life carefree of any problems with what I eat or how I use the bathroom.

Ultimately it is a personal decision. Only you can make it.

But getting advice here is a start. An informed decision is the best way to go.

P. S.

My surgeon left everything intact. If I want a pouch or bcir in the future I can. That is important information.  She did not remove my rear. Sphincter. I don't have what they call a barbie butt.

Richard.

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