Skip to main content

Reply to "FAP -J Pouch pros cons and experiences"

"high grade dysplasia and a malignant polyp in the anal canal made pouch removal necessary" wow it's a really good job I read your post then, going to certainly talk to mine about that then, though I don't know what kind of risks I have with that, believe there arent any right now but certainly going to raise that with them next time I see them or certainly ask.

Thanks so much

In response to FAPQUEEN (love your photo seriously) yeah people can have varying experiences of having a pouch done, some just sail through it whereas some then spend a while adjusting I am in the latter rather, taking me a while for it all to settle down, even on codeine phosphate right now to help control it all.

It can really be tough to yeah get everything done, I mean you think you've conquered one area then one problem happens (for me a heck of a lot of tiredness but then worked out why that has been a problem for a rather large part of it but that's partly nothing to do with the pouch itself at least), now just exercising my pelvic floor, for things like that it's better to get a really experienced doctor to do the pouch due to things like damage to the spinchter muscles, luckily when I had a continence nurse look at mine they said mine were absolutely fine though the surgeon doing the pouch back in early december in 2016 is the most experienced surgeon in the UK doing pouches overall so was really lucky with that.

I could have got to 40 years old or should have rather, but I thought 36-40 it's not that bigger gap really and I was going to have to have this at some point anyway may as well be now and it's convenient was off employment for a while, ended up with some mental health issues so it was far more convenient not to worry about having to go back to work also my actual consultant as my surgeon who did the pouch isn't my consultant, they said I was like a ticking time bomb.

I think really it all boils down to having an amazing support network around you both social ones and clinical ones (family and/or friends) is really crucial with all this that's what I think anyway.

You have to be really patient with the pouch though since it can take anything up to a year (mine when I told them of my problems I have can take 4-7 months to settle down, believe others may have said up to a year so yeah.

All the best,
Jez.

Copyright © 2019 The J-Pouch Group. All rights reserved.
×
×
×
×