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Reply to "FAP -J Pouch pros cons and experiences"

I hope that your surgeon is much better at performing J pouch operations than he is at answering your questions. This surgery is complex and it is best to have a surgeon who has done many of them.  I suggest that you ask if you could talk with some of his patients who had this surgery.  Most people have good results with a J pouch, but with FAP, it is essential to have the pouch and upper GI tract scoped frequently (annually for me) since polyps can re-occur.  I had my J pouch for 30 years before recurrent high grade dysplasia and a malignant polyp in the anal canal made pouch removal necessary.  I opted to get a BCIR (continent internal pouch) since I very strongly did not want to get an ileostomy with its associated issues.  With hindsight, I would get a J pouch again as an initial procedure.

Bill

 

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