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Reply to "Extreme Pouchitis"

I am so sorry for what you are going through. Yes, some (but not all) of us had the most unbearable suffering at the hands of this disease, it is impossible to put it in words.

Did all of this start soon after takedown or later? Why did you have to self diagnose? Could your GI or surgeon not diagnose it? You might need to see doctors who are more experience with IBD and in particular j-pouches, it makes a day and night difference.

Due to pandemic, most Drs in major IBD research clinics now accept tele-conference visits. You might be able to get an appointment from places like Mt Sinai IBD center in NYC, Cleveland Clinic, where they see hundreds of j-pouch patients.

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