I'm really curious about this. I believe Entyvio is the brand name of vedolizumab? I was in a critical trial for vedo before I had the surgery, and it did nothing for me. Some have said on this forum (maybe not in this thread) that biologics act differently on a pouch than on a sick colon. So I would be willing to try vedo for increasingly chronic symptoms (not quite pouchitis but not quite healthy). However, in Canada (where I am), it seems vedolizumab is still in clinical trial for pouchitis, and there is a chance I would only get placebo. I have an appointment with my GI next week and I plan to ask him about this (he's already suggested I go into the trial for vedo), but I was hoping someone here might know the answer. It sounds like Entyvio is available in the US for pouchitis. Is it covered by your insurance, or do you pay out of pocket for it? I did Remicade for a while for my UC and was lucky enough to have it covered by my insurance (didn't pay a penny past my small annual deductible).
Any answers would be most helpful, thanks!