Reply to "enterocutaneous fistula"

akteacherMember

Hi, I have this type of fistula. I've had it since 2006. Dr. Shen has tried every year to use "bear claws" to close it at the tip of the j-pouch w/ no success. I don't have a lot of drainage from it - usually can put a tissue folded over it and just place a new one when needed (not very often).

My last pouchoscopy was this past Friday (May 4, 2019) and he is going to now try hyperbaric oxygen therapy. I don't know if I'll have any success with this or not, but I'm willing to give it a shot (if insurance will cover it - I hear it's quite expensive). I'm hoping it will be the one that finally works.

I do not want to lose the j-pouch or try to have it surgically repaired as Dr. Remzi says he cannot guarantee I won't end up with a permanent iliostomy, so I just try to live with it. Hopefully, this HBOT will work!

Good luck!

5/6/198:17 PM

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