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Reply to "Endscopic disease (severe pouchitis) BUT good quality of life"

I wonder about this too. I had my takedown about 7 months ago and Have had symptoms on occasion where, and this is just the best way I can describe it, I feel like I have a sock shoved up my butt haha. not severe pain, just sort of... inflamed feeling. I still have about 5 bathroom trips a day. occasionally will bump up to 7 and I have daily nagging stomach aches in the evening. I wake in the morning and feel fine but once it starts I notice i dont pass as much gas and that makes me feel a little worse. I still do what I want, eat what I want, no severe urgency issues but it just sort of "pops up" and will last about a month at a time then a noticably worse pattern will happen and ill go on canasa for a month, get better and it starts again in another month or so. my last scope during symptoms suggested cuffitis according to GI. She says if it happens again we need to discuss long term goals to treat it even if symptoms arent bad.... really dont want to be back on biologics. but i sympathize with you...

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