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endometriosis or pouch

Hi all,

 

I've had a J pouch for 16 years with no problems at all (yay!). But the past year, I've had terrible pelvic pain and gynaecologist thinks it is endometriosis. Initially I did really well on hormonal treatments for this, but now  I have stopped responding to these and pain is back and worse than before. I'm being sent back to colorectal surgeon to see if there is something structural in the pouch that could be causing my pelvic pain as it is unusual for the hormones not to help if it is endo.  Has anyone ever had any "shifting" in the pouch, like a prolapse, that needed surgical correction for pain? Also, has anyone had a laproscopy for endometriosis with your J pouch? It sounds like it is very risky for us pouch girls to have one so I am worried, but equally don't have ay other options right now other than narcotic pain killers until I hit menopause which really isn't an option.... thanks for your thoughts.

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