Hello all, I just wanted to share what my daughter has been going through this winter until now-early June. She has been in increasing pain. She ended up in hospital mid-May. Boyfriend found her passed out on bathroom floor-toilet full of blood and gash in head. After week in hospital-bleeding out three times, (and stitches in head due to fall against bathroom counter)cuffitus was controlled with Kenelog injection.(this after more radiation-scopes and upper GI). She was sent home only to return two weeks later in extreme pain, vomiting, not tolerating any food. Again, after MRI, upper GI, blood work-it all came down to extremely low levels of Magnesium, Potassium and iron. She will be anemic forever, but long story short-she should have blood-levels checked every 3 months and get infusions of deficient minerals and iron. She was told not to take iron pills as they are so harsh on pouch and system. Can anyone add to this experience or care for electrolytes?
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