I agree with your latter point- I had the surgery at age 29 after 20 years of UC. If you feel fully informed about all the risks, then I would suggest you still get a second opinion from another GI and then if surgery is deemed your best option, make sure you pick a good and very experienced surgeon. From your earlier posts I was under the impression that your current GI isn’t advocating surgery and probably doesn’t believe you have exhausted non-surgical treatment modalities. I believe that if that is in fact true, you should proceed cautiously, and all I tried to do is reinforce that cautious mindset.
Thanks for your reply. I am 31 and have had UC for 18 years, so similar to your age/length of time with disease at the time you had surgery. My doctor is not against surgery. He is totally understanding and knows my frustration. When I asked for a referral he said that was totally fine. It was just his opinion that I should try entyvio. It’s not that I’m completely unwilling to do entyvio...I’ve always tried every drug my doctor suggested in the past. I’ve just personally got to the point where I’m frustrated with meds not working. I know surgery is a drastic measure, but that’s just where I’m at emotionally and mentally. Another thing....every year my colonoscopy shows inflammation. Every single time. On top of that, my colon is FULL of pseudopolyps. 100’s of them from the years of constant inflammation.... While I know the pseudopolyps themselves aren’t going to turn cancerous, I’m stressed that something will eventually be missed, like a cancerous polyp hidden among the others. I use to feel hopeful trying new drugs but after years of disappointment, I just don’t feel that way anymore.