Elective surgery??

Kh1988Member

Has anyone been told they aren’t “sick enough” to have the j-pouch surgery? How elective is the surgery I guess is my question? I’m 31, 17 years with UC. First 4 years I was horribly sick. In and out of hospital. High doses steroids, blood transfusions. Then for some reason my body adapted I guess? I’m not as sick as I once was but still flare a lot. I have a flare probably every 4-6 months. Take steroids to get it under control. Never been in a substantial remission. Never had one year where I didn’t have issues. Yearly colonoscopy always shows inflammation. Told I have a colon full of pseudopolyps. I’ve tried every drug. Remicaid worked but then had allergic reaction. I’m terrified of getting colon cancer. If I was told I could have the surgery I’d do it but my GI is being difficult and is acting like she won’t refer me to a surgeon. I’d just like to talk to one I guess and see what they say but gosh...

2/27/192:40 AM

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