Skip to main content

Reply to "Dysplasia in the Pouch"

Alysia,
First off, I am so sorry that you have to go through this..it is a major stressor to have to go through the tests, wait for results and then have to go through them again...It is really tough...
Just to answer the k pouch question...having a k pouch is not a difficult thing to live with...it is much easier than people think...for the most part...you have very few supplies to deal with...just a reusable tube, some lube and something to cover your stoma up with...it is a flat, tiny little stoma (thing pink bellly button)...your pouch sits in your abdomen, when you feel that it is full (you will know) then you go to the bathroom, put the tube into the stoma and the stuff pours out. When done you remove the tube, rince it out and wipe off the stoma then cover it with a pad or folded up kleenex.
I carry a little water bottle into the stall and use it to squirt the tube clean of irrigate the pouch if things are too thick in there...
You can eat most foods if you chew well, if not you avoid stuff like corn and peas but otherwise most stuff if ok. You can sip some prune or grape juice to thin things out in there.
If you have to have a new pouch built then it is still very major surgery..no fun but it is a one step process and you find yourself waking up with a k pouch.
If you would like some more info on the subject then post in the k pouch section of this forum or PM me..I will be happy to answer any questions you might have.
I hope for your sake that the tests come back negative and that everything is ok...
Sharon
Copyright © 2019 The J-Pouch Group. All rights reserved.
×
×
×
×