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Reply to "Dysplasia in the Pouch"

Alysia,

I have a very similar history to you as far as the chronic pouchitis, but no dysplasia findings so far in the pouch. However, I did have low grade dysplasia (LGD) in my colon before colectomy and am compelled to ask if you had LGD in your colon as well. This may be important. It has been important in my treatment as I am on an annual pouchoscopy schedule specifically because of it.

I am told pouch cancers are rare, and I am also told that the rectal cuff is the most likely area where cancer will be seen based on studies by the Cleveland Clinic. Your LGD finding in the pouch sounds somewhat anomalous. I don't recall anyone on the Board previously posting about it.

May I also ask how you have treated the pouchitis since 1996?

Let us know the results of your blue dye test. Good luck!
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