I had my annual pouchoscopy in late November and they found low grade dysplasia in my pouch. My doctor was concerned becasue he says dysplacia is not common in the pouch (usually it is in the lower area by your rectum and mine is higher up.) I went today for another scope with a blue dye study. I won't have those results till next week but he told me the worst case scenario would be removal of my jpouch. At this point he wasn't even concerned about my pouchitis.
I had my jpouch surgery in 1996 in one step and have dealt with chronic pouchitis since then along wiht the night time leakage/incontinencce. Even though I have moderate chronic pouchitis I okay with it because the funny part is I really don't have too much pain associated with it and typically only get up once during the night to go to the bathroom.
I have never had to have a bag and this would be my worst nightmare and I told him this. He mentioned the Kock Pocuh and luckily my surgeon has done many of these. I am hoping the biopsies will show low grade again or nothing bad cause then he said they will just watch it and I will have to go back again in another 6 months.
Has anyone ever had this and give me some encouragement. Is this something that could just go away? If not what should I expect if I go with the Kock Pouch Surgery?
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