Thanks! It doesn't seem any different than when I went to MD Anderson. I am waiting for my patient packet to come in the mail since she said I needed my medical ID number to fax everything. I have all my scans on CD and records ready to go over. My GI here is great but nothing shows up in barium bowel tests, scopes, etc. and I have bacteria overgrowth not pouchitis but I don't test for it. I seem to not be getting any better and over it. If I can get to the bottom of my issues, if it is outside my pouch causing things with a combo of internal issues my BCIR would be perfect. I just want this to be resolved or someone to figure out the problem so I can move forward with life. I had surgery not to die from FAP and I am not living it to the fullest lately.
Do you know of cheap places to stay in the area?