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Reply to "Dr. David Dietz"

I am so terribly sorry Sydney,  I really am.  I have never dealt with him but dealth with his evil twin in Paris in 2000. Although I did not lose my k pouch, he moved it up to under my belly button..About the worse place for a k pouch stoma, ever. The stoma sunk deep into the abdomen and was practically unreachable. It was also at my abdominal break-point where I had a crease. The result was an intubation nightmare, My stoma corkscrewed and caused endless bleeding. I could only intubate laying on the floor or in the tub. Made work in Paris nearly impossible.

When asked why he put the stoma 'there' the answer was that I hadn't said that I didn't want it there! (he had never mentioned moving it). When I told him that I could no longer go to work he told me to stop working! (I was single at the time and broke).

He was the president of the order of surgeons in Paris and no other surgeon would touch me after him. He watched me suffer, hemmorage and slip into a deep depression.

I was saved when while traveling to Toronto my tube got stuck in my stoma during a flight home and ripped it practically out of my body.

Emergency surgery followed within hours. Dr C was my saviour. He fixed my valve, repositoned my stoma and gave me back my life.

He has been know to reconstruct k pouches from patients who have lost theirs so there is still hope for you. Do not give up.

It has been 11 years since he gave me back a functionning k pouch and in spite of the trial and tribulations I could not be happier.

Contact him if need be. Just PM me for any info.

Do not give up.

by the way I have had staples, stitches, steri-strips, Montgomery ties, girdles, corsets and a mix & assortment of  abdominal closings...They don't change much. The scars are usually the same in the long run...And even that can be fixed. 

Just heal, get healthy and then go for another k pouch when possible. 

Sharon

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