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Reply to "Does Anyone Else Here DREAD Eating??"

Wow Kath, so much to digest here! No pun intended.

At first I thought perhaps you were starting from square one following your surgery for volvulus and all the aftermath of that. However, it would appear you are about a year out from that mess, so things should be beginning to settle in, not maintaining this level of intolerable dysfunction. But, it definitely can take longer to adapt.

Eating is supposed to stimulate peristalsis, which is great in an intact GI system. Once the colon is removed, the body adjusts in time by slowing and absorbing water better from the small intestine. I am probably telling you something you have probably already explored with your doctors, but this sounds a lot like short bowel syndrome.
https://www.niddk.nih.gov/heal...short-bowel-syndrome

If you have tried all the options for slowing the gut to get better function, then it does make sense to look at end ileostomy, or perhaps a continent ileostomy (Koch pouch or BCIR). There is the possibility to salvage a healthy j-pouch to use for a continent pouch. An attractive option if you do not want to lose any more small bowel and have worries about issues with ostomy bags.

There are quite a number of members here who have converted to an end ileostomy successfully and also a continent ileostomy. Take a look at the K-pouch Forum and Ostomy Forum while you wait for more replies.

You have been through a lot so I think you know what your best path is. I can only empathize because I only had a short stint on TPN and never had complications as serious as yours. I actually enjoy food too much and battle obesity, but there are others here who have had similar problems as you.

Best wishes on your journey!

Jan

Last edited by Jan Dollar
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