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Reply to "Do you typically see blood with pouchitis"

Hi,

I think you are on to something here. I have cuffitis (I was a long term UC in the rectum sufferer).  The scope plus biopsies is the only way to determine cuffitis and treat it properly.

Once my pouchoscopy biopsies came back with UC, my GI and I decided to treated aggressively with daily canasa suppositories. This stopped all bleeding and reduced my BMs to about 4 a day.

I do not ever want to have to operate down in that area again, because if inflammation from cuffitis goes unchecked, I could wind up with dysplasia in that area and lose the pouch.

I believe your instincts are correct for your child and by having the right people obtain  the most accurate diagnosis you can help ensure your  child  has a life that lets her maintain that pouch for many years to come!

Last edited by New577
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