@Former Member posted:
Yeah, even though I endure bouts of fatigue and a disturbed sleep pattern; life with a J pouch is absolutely wonderful.
100 trillion times better; especially as I don’t need to carry supplies, have to empty my bag every two hours or be changIng my appliance every few days.
In fact, I’ve not been into a disabled or public Toilet for years, it’s so long ago, I can’t even remember.
Although, more importantly, I don’t have a bag hanging from my abdomen and I can sit around in my boxer shorts without worrying whether the bag can be seen, even though I’m all alone.
Also, I can look at my self in a full length mirror, whilst wearing just my skin tight boxer shorts, without the top of the bag staring right back at me.
Yeah, when I had the stoma; every three years, I had to have what is called a sigmoidoscopy, to check my back passage (so to speak) for Cancer, inflammation and signs of Colitis (Proctitis)
During the 9½ years; I didn’t have a pouch; my large bowel (Colon) had been removed and an end ileostomy was created.
I only had my pouch created during 2014 as part of my J pouch surgery.
My takedown was during 2015 and since 2016, I’ve been discharged from the care of the Hospital that created my J pouch: and they believe, pouchoscopies aren’t necessary, until symptoms arise which warrant further investigation.
I am glad to hear all of that, I am glad you are doing very well! I would get a second opinion about that pouchoscopy thing, most of us get it checked every year- no exceptions. You cannot always feel a problem and when you do feel the problem, often times its too late or in the danger zone. I would try to get it checked every year if I were you.