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Reply to "discouraged after takedown"

for the 1st several weeks after takedown, I thought I had made a huge mistake having an internal pouch! I was in the bathroom constantly. My mom had had a traditional ileostomy many years before with no problems. However time (and meds) improved everything. I learned what foods made things worse--gas, increased frequency, sore butt,etc. My MD started me on alternating doses of Lomotil and Imodium, which helped. I am a pharmacist, so after reading up on anti- spasmodics, I had my family MD order me some Bentyl, also. I am  almost 14 yrs post surgery. I work an early morning (6:30) to 1pm shift, so I have learned not to eat solid food after 4pm. I still get up once or twice a night, and I wear Depends just in case,if I feel like I haven't cleared out, before I go to bed, I set an alarm for a couple hrs later. i think everyone is a little different with what foods they can tolerate. Oatmeal, Metamucil, any thing high fiber gives me horrible gas pains, while I know others do not have problems with them. Hope things are better for your daughter soon. Vickie

 

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