Reply to "Disconnected pouch still sick"

Yes.  I had the pouch disconnected (i wanted it removed and surgeon convinced me to keep it in).   Not only did I continue to have pouch issues, I developed additional issues - lightheadedness, dizzy spells and some others.  I continued to have pouchitis with the pouch disconnected.

I went 18 months with the disconnect then had the pouch removed.  12 years later - post pouch removal - not one GI problem (except if I get a stomach bug I need IV at the hospital to rehydrate).  I haven't even seen my GI dr in almost 4 years because I've gotten lazy and have no specific reason to see him.

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