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Reply to "Difficulty emptying J Pouch"

Thank you for your response Helsbells,

I can imagine the nightmare you went thru dealing 5 years with Pouchitis and a incompetent doctor who didn’t help much.  So sorry for that! It is frustrating.  Some doctors are too proud to admit you should see someone else who really can help you.  I’m glad your mom encouraged you to do it.  

My case is similar to you since I was dealing with Pouchitis practically 5 months after my JPouch was all good to go.  My biggest concern is, antibiotics might cause side effects (in my case Ciproxine caused me C.Diff every time I used it) and could affect the good bacteria in the pouch.  Right now I’m on Xifaxan (for two weeks) and seems to work, but once I finished the treatment, my diarrhea, excessive gas, pressure, pain and discomfort starts all over again.  I’m trapped in the same endless cycle and can’t get any better.  I have no quality of life, I have to quit my job because of my illness and instead of things getting better for me, is just the opposite.   I don’t want to give up on my JPouch because dealing with the ostomy bag was terrible for me, but I really don’t know what else to do. 

Anybody feel free to express opinions or suggestions.  Does anyone is dealing with  similiar issues?  The advice in this forum really helped me in the past. 

Thank you again,

Laura 

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