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Reply to "Diet and comfort etc..."

I have been told, by my GI and CRS, that over time, the mucosa of the J pouch does turn more "colonic."

My GI has said that the pathologist will read biopsies on "old" pouches (not old patients, old pouches), as "colon." I can't point to it quickly, but I have read some studies about gene mutations in pouches. They change over time.

Stands to reason if that is the case, more water IS absorbed, and things can get thicker. Our outlet area (anal area) is not as flexible or large in diameter as a "regular" person's whose never had rectal/anal surgery (according to my surgeon). That's just the truth. The small intestine in a normal anatomy person's body does not fully break down things like skins, etc., either. Even certain things don't break down in the colon (ie. mushrooms, corn), however, their rectum/anus can stretch more to allow the undigested pieces the ability to pass. Ours sometime cannot. Also, our sphincters do take a little hit because of the perianal manipulation and suturing/stapling.

That's where my strictures and blockages have happened. Down low.

Others who have issues higher are often related to scar tissue, not necessarily inflammation. Our insides do not sit where nature intended them to sit. I've not had bowel issues due to scar tissue, but I've had reproductive issues because of the scar tissue entangling my ovaries and adhering them to places they're not meant to be. Can happen with bowel, only, too, and cause issues with blockages.

I, too, sleep through the night. Always have, after about the first year, unless I eat indiscriminantly/late, then I might get up once. I go 4-6x a day. I ate ANYTHING I wanted for 20 years, nothing gave me major issues. Only really in the last 2ish years have I had to edit more, because of my lower anastomosis issues and perianal fistula.

It is also interesting to me that pouchitis issues are nearly the exclusive problem of those with IBD vs familial polyposis patients. As if our genetics with inflammation cannot let go. I've been spared those issues for the most part, but the times I've gotten it were usually related to increased sugar intake (like around Christmas, when I ate too many cookies!). I do think refined foods are not the way to go, for sure. Also, years ago I went to olive oil, butter, and coconut oil as my fat sources. I never bought into the low fat hoopla. Perhaps that has helped me be more consistent over the years.

I'm glad you found something that works for you, though, and truly it might help others. I just wanted to point out some things about us that do make us different; our insides are not normal, and you really can't compare our small bowels with a normal person's anymore because of the manipulations we've gone through.
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