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desmoid tumors or just a growth on the outside of the small intestine

I have read that desmoid tumors are the rarest form of tumors to have.  Who on j-pouch.org has desmoid tumors or if the growths they have are not desmoid tumors and just growths on the outside of the small intestine?  What medicines are you on to help prevent them from growing?

Last edited by ksr
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