Oh my, this is the worst I have ever heard. You are surly a survivor to have endured all this pain. I pray u have good days because that's we live for the good days. I know when I had the ileo temporary until reversal it was awful. I had so much output I needed a additional bag at night to hook up to drain in. I was in hospital every week for transfusions. I made it and when I had reversal it slowed to 1/2. Instead of 12 -20 a day now down after 5 yrs.. 7-8 on a good day. I think this is how it is for me. We are all different. Press on and find that balance and don't let them do any more surgery. I believe once they continue to do this it only gets worse. I will not go to a ileostomy unless it is life threatening and even then I am not sure. That experience wasn't good and I don't think I would last. God Bless and I will keep you in prayer.