Reply to "Cured? No. Disabled? I think so."

Most J-Pouchers aren’t disabled, though the extra bathroom trips can be an inconvenience. Some J-Pouchers (a small subset) are disabled; this can be from untreated (or inadequately treated) pouchitis or cuffitis, untreatable pouchitis or cuffitis, an unresolved mechanical problem (pouch prolapse, twisting, or other surgical failure), unmanageable fistulae, severe incontinence, or a few other odds and ends. Most J-Pouchers never visit these forums, but folks with significant problems are much more likely to visit than folks who are doing fine.

It’s best to assume that others are having their own very individual experiences of life with a J-pouch. If you are struggling then that story can be very helpful to others, but it’s best not to assume they are experiencing the same thing. If you are succeeding the same applies: whatever is working for you is worth sharing, but you really can’t know if it will work for anyone else.

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