Reply to "Cured? No. Disabled? I think so."

Mysticobra posted:

UC is an autoimmune disease. You may get rid of a part it affects. But you still have the disease. That never goes away. And it shows it's ugly head in other forms 

Some consider what has been done a cure but the cure is individual.  I feel having my colon out definitely cured me of the problem of uc because I just flat out don't have it anymore. And comparing my life now to when I had uc I think it was "my" cure.  That's my view. As for it being a disability on its own. No way. No matter how many trips to the can (I counted 40 one day at work. 8 hours).  That was a bad day. As for an ileostomy being in the disability range. Nope. It's not. If it works and works well no Dr or surgeon will ever say you are disabled. At least mine wouldn't. I asked her just for the heck of it. She said no. 

Autoimmune disease is for life. We have to learn to live with it. The best we can. 

I've had the temporary ileo. The j pouch. (which was two years of hell) Did not work in my case. And now I have an end ileo. This is where I need to be. It's "my cure" . I don't feel disabled. I feel abled for the first time in decades.

R. 

So if I were to apply at McDonalds for example, and told them that I would have to take 40 restroom trips during my shift you really think they would hire me over the next guy? Wrong. You think they would keep me after the 90 day period even tho I spend half of my shift in the restroom? Also sanitary issues exist. I understand certain jobs may be possible, however in no way shape or form would I be able to perform tasks that most jobs require. Also, someone without UC can physically do more work, it’s just a fact. What it breaks down to is a factory job where you literally have to raise your hand to use the restroom. If I worked on an assembly line and had to take an urgent bathroom trip the entire assembly line would get backed up and shut down and I would be fired or Have my hours cut down. I’ve witnessed it first hand. I am very happy for those of you that are able to work! However I am not asking if I am disabled, I know I am however I am doing my best to work through it and asking for he opinions of others who are disabled. 

Copyright © 2019 The J-Pouch Group. All rights reserved.
×
×
×
×