Skip to main content

Reply to "Cured? No. Disabled? I think so."

Pouch bro ; I will have to apologize for not needling to apologize.  I do not have some of the adverse side effects or , associated symptoms related to having a ileoannal reconstruction . I guess nobody dose being that we are all cured, right. 

I know that there are systemically several conditions and combinations that Social Security uses to determine a disability . I was trying to plan for when I got worse and I was employed working as long as I could.  Social  Security  list the pouch surgery as cured for IBDs`.  with any large system the main thing is preserving the  solvency of the system.  Some pouch surgeries preformed  on persons whom can not afford it or back then had no health insurance and  become disabled  from Crohns or CUC ect... and determined to be disabled by SSI, are able to have the surgery based on it is justified as a "CURE" to get them back into the Medicaid, tax paying workforce.  Which is all good and well but, for the people that let say have a more sever autoimmune disorder and complications and as they get older and try to stay employed as long as they can for their own betterment  in order to keep there employee benefits that they have been paying for and, lets say they have disability insurance  and, then after 25 years of factory assembly line work  and, after the 21 years of symptoms  and complications of being "CURED" becoming increasing worse  your G.I. surgeon/doctor has to eliminate your FMLA  because as you need it more for what it was in acted for it has been brought to his attention that your patient  is adversely effecting his reputation . I think this is where Paul Harvey would say " and now for the rest of the story".

 I do not mean to get off track but, it can be unreasonably ; I would not say "difficult" because I am using the word "unreasonable"  in its` true definition. The systems can be unreasonably opposite for some individuals` cases/ lifes. An analogy that persons can see is when a national or international injustice is only addressed when the media has brought it to public attention.  Like the Gulf War Sickness or,  I would mention young males having been molested for decades, but I well have to stop there stating that as only an analogy of how unreasonably opposite a system can be for the individuals.  The determination that SSI uses as the pouch is a "CURE" is final and one factor.   That is for the physicians also.  If you are fortunate that you are cured than, that dosen`t matter to you, you don`t need to be told that.  For our other brothers and sisters whom prognoses is a hard road  ahead and have so much on their plate it can be one giant steam roller.  Imagine if they were on a voucher system of health care. 

 Thank God for the right to a free press.             

Copyright © 2019 The J-Pouch Group. All rights reserved.
×
×
×
×