I came across a reply earlier and someone said they believe the J-Pouch surgery had “cured” them from UC. Does anyone feel cured? For me personally I strongly feel that we are not completely cured HOWEVER we are no longer at risk of having Toxic Megacolon, severe blood loss, etc. Also, for those of us with absolutely no colon or rectum, we have so much less room to store waste and gas! Those of you that got to keep even a small piece of your colon or rectum are very fortunate & probably have much thicker stools & less frequency. My doctors, family, and friends think that I have been cured by this surgery. I will tell you right now that in no way shape or form am I cured, however I would rather have the occasional bout of Pouchitis, severe gas daily, and several bowel movements than lose liters of blood each day. Does anyone else feel like they are disabled? & if anyone has been proven to be disabled and on SSDI or SSI PLEASE reply or send me a direct message! The SSA is telling me I am not disabled because “I can be a delivery driver”.... I cannot even drive a car with my UC! The last time I tried to drive I nearly crashed because my stomach pains nearly cause me to black out. I am 26, do they expect me to deliver pizzas my whole life? I cannot image being a delivery driver and stopping 15 times to use the restroom during a shift. I wanted to post this in Rants/Raves however it is pretty general. If this has not affected your work life you are very fortunate and that is great for you! I simply cannot work, as no job will allow me to take the restroom breaks I need, sanitary issues, pains, etc. I really need help from others who are disabled.
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