Reply to "Cuffitis/Pouchitis Pain"

Was it Rectal Cancer? Mine was colon cancer directly linked to Ulcerative Colitis. 
when they found the mass my colon had so many holes in it that it didn’t make sense to keep it. Having that ileostomy was a nightmare and the worst time in my life!

BTW.... I had Breast Cancer 15 years ago and then Stage 3 Cc ... in Remission for 1 year and then it showed it’s ugly head again in my Lymph nodes. My original Oncologist wanted to do chemo again and I refused. I went for a 2nd opinion and accepted at Johns Hopkins in a clinical trial (Keytruda). When I went to see the Oncologist at Hopkins she said, “we are going to wait for the cancer to grow and then we’ll place you in the trial. By the time the cancer grew Keytruda was FDA  approved for Metastatic Colon Cancer with Biomarkers that are MSI- high. That’s me. 
I had 4 infusions and my immune system kicked in and started killing the cancer and me. Yep... Luckily, my oncologist alerted me what side effects to look out for. We were very aware and I still ended up in the ICU due to an allergic reaction to an antibiotic that I had taken in the past. I developed MRSA and almost died. But here I am ... almost 2020 and thriving!  Please don’t give up hope. I do suggest that you seek help at a nationally accredited cancer facility... a 2nd opinion can only help or even a 3rd opinion! Don’t give up yet! Good Luck❤️❤️

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