It is months after you posted your shout out for help with cuffitis, and I am hoping you have found relief, a new GI and have gotten some help. My daughter went through so much of the same issues. Her cuffitis was so bad that she eventually had to have j-pouch and rectum removed and K-pouch built. So much better!! She still has issues, pain...but more good days and not the agony that you are going through. We are in Farmington Hills MI, and have a good GI here. But, when she needs help we head to Cleveland.