After reading your first pos againt I caught the part about seeing a surgeon in 2 weeks and wanting help before then. Hopefully the surgeon you are seeing knows more about cuffitis than your GI. Hopefully s/he can give you more guidance and help with your cuffitis and/or can refer you to someone that is a GI that is more specialized in IBD/cuffitis. We understand you not wanting further surgery. It is crazy that such a small portion of our j-pouch can cause so much pain. I think part of it is because our cuff is assaulted with more acidic waste than before. I didn't have the same sort of pain when I still had UC and the cuff is in the same place now that it was then, attached to our sphincter. I'm not saying it is worse than UC but it sure burns more than I remember doing before my surgeries.