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Reply to "bad cuffitis! my doc has given up! Please help!!!!!"

You need to find a surgeon who is very skilled with pouch advancement and mucosectomy before giving up on the pouch. I second Jan's recommendation to see someone at Cleveland Clinic . I would recommend Dr Remzi there.  I have had similar issues due to a stricture and ongoing inflammation in my cuff and he is the surgeon I would pick if I ever have to advance my pouch.  I have had relief with ongoing Canasa suppositories when I have alternated  these w anucort also. Best of luck.  I know this can be very frustrating and incredibly painful.
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