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Reply to "bad cuffitis! my doc has given up! Please help!!!!!"

Cuffitis is a horse of a different color.  It's UC per the biopsy reports taken from my cuff and I agree with Jan. I don't think diet helps it much. My GI referred me to an IBD specialist when we couldn't get rid of my cuffitis with Canasa and Anucort.  I tried one for a while and then the other or 3-4 months before he referred me to a Mayo Clinic IBD specialist.  He told me to keep using canasa until it got better.  I also used anucort too when things were most painful.  Canasa in the p.m. and Anucort in the mornings.  It did gradually get better. Every time I went off of canasa cuffitis would return. He had me use it every other night and then 2-3 times a week to keep it in remission. I thought about pouch advancements with muscucomies too.

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